the rare disease told in the film with Bella Thorne

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In 2018 Il sole a midnight told a tearful story starring two teenagers played by Bella Thorne and Patrick Schwarzenegger, but does the girl really suffer from illness?

Released in theaters in March 2018, The sun at midnight tells the story of a seventeen year old with a passion for music and singing that is suffering from a rare disease since childhood. For her being exposed to sunlight is lethal. During the day she lives closed in the house and it is after sunset that her world comes to life, when she leaves the city and plays the guitar in front of passersby. One night she meets a high school mate who she has been secretly in love with for years and she has the best summer she ever had with him. Directed by Scott Speer, novelist as well as film director for teenagers, The sun at midnight is played by Bella Thorne and yes Patrick Schwarzenegger.

Shot in Vancouver, Canada, the film is a remake of Japanese Taiyô no uta which in 2006 had launched the career of the young singer-songwriter Yui and it had been very well received by the Japanese public. The midnight sun also marks the will of the 23-year-old actress and singer Bella Thorne to show his versatility, with a deep and dramatic story, and the first notable character as a co-star of the 27-year-old son of Arnold Schwarzenegger after some supporting roles in seven previously shot films.

The sun at midnight: what is the rare disease that the girl played by Bella Thorne suffers from

Katie Price, the character of Bella Thorne, cannot expose itself to sunlight. The disease he suffers from is not the fruit of the writers’ imagination, it really exists and is called Xeroderma Pigmentoso. It is a disease of genetic origin and is caused by the mutation of one or more genes that produce a protein essential for DNA repair. Those affected have a high photosensitivity to ultraviolet rays of the sun which can create keratitis in the corneas and skin carcinomas. In the US and Europe, one person in a million is affected, while in North Africa and Japan one person in 100,000 is affected. There is no cure, and the only way to extend life expectancy is to spend time in an environment with no sunlight. Who suffers from Xeroderma Pigmentoso you must have regular skin and eye checks and appropriate treatment of cancerous lesions.

Below theinterview with Bella Thorne on the occasion of his passage to Rome for the promotion of The sun at midnight, the morning after an itense and rare snowfall that had whitened the capital.

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